It takes a lot more effort than necessary to think of titles for my blog posts that aren't the same thing all the time. :P I know it's a trivial thing...but my brain gets hung up on things like that. I mean...my essays in school always took just a little bit longer because I couldn't use the same words in close proximity to each other. I don't know...it's a thing. lol. But...at least I have a lot to update this time instead of just droning on about the same ol' things all the time. :P
The last week of April and into the first couple days of May, I had a really bad migraine. Several days it was so bad it even woke me up early in the morning. It had been awhile since I've had a migraine last that long and be that intense. Since I have hemiplegic migraines, I'm not supposed to take the triptans that are commonly used as rescue meds for migraines due to an increased risk of stroke. Basically all I can do is take 4 ibuprofen, a Benadryl, a promethazine, and put an ice back on my head or neck. Some days that just doesn't cut it. I've been taking nortriptyline for 13 years now as a migraine preventative for my hemiplegic migraines. While I've only had two hemiplegic migraines since then (one was NYE 2013 and the other was after I had a scratched cornea in 2019 and the ER doctor shined a light for too long in my scratched eyeball), I still get regular migraines pretty frequently. My doctor prescribed me topiramate as a preventative a few years ago, but that didn't make much difference.
Johnny had a phlebotomy appointment on May 1st and since he needed to make a regular doctor appointment to refill his prescriptions, I went ahead and made appointments for both of us with our family doctor the same day (so he only had to take off work one day instead of two). I was going to get an allergy shot while we were there, but I totally forgot about it. I talked to our doctor (who is amazing) about the migraines and we decided to try Aimovig as a migraine preventative. It's a CGRP (calcitonin gene-related peptide) monoclonal antibody that is a receptor blocker. Previously, my doctor had given me samples of CGRP receptor antagonists to use as rescue meds. Ubelvy isn't covered on our insurance, and Nurtec is $150/month (my doctor also gave me a few samples of Nurtec in case I need any rescue meds, though.). Meanwhile, Aimovig is only $100 a month and we have a copay card from the company which takes it down to $50 a month. And I don't mind doing injections...needles don't bother me at all.
It took forever to actually be able to get my prescription for the Aimovig. It requires prior authorization with our insurance...and that took awhile. Then when the prior authorization finally came through, the pharmacy didn't have it in stock. In fact, none of the area locations had it available. But we were finally able to get it Monday night. Johnny picked it up at about 8:30pm and I waited half an hour (it's kept refrigerated and it's recommended to wait until it's room temperature so it doesn't sting as much). It's a SureClick Autoinjector which was really simple. Prep the area with rubbing alcohol, remove the white cap, pinch the skin on my thigh, push the pen all the way down, press the button (it'll click) and hold it down for about 15 seconds until the window is completely yellow (and it clicked again). Then dispense then pen in a sharps container (I used an empty detergent bottle that I already had) and that's it.
Honestly, I wondered if I did it right at first because I felt absolutely nothing. But after I tossed the pen, there was a dot of blood so obviously it worked. A little while later I could feel where I'd done the injection...but it wasn't what I'd describe as painful. However, the next day I started feeling kinda crappy. I thought it was allergies (especially since I'd forgotten to get my allergy shot) but after four Benadryl and two Sudafed and it didn't really make a difference on my runny nose and sneezing. Then when my throat started hurting and I just felt kinda blah and achy...I realized it was probably the "flu-like" symptoms that can sometimes be side-effects. I felt a lot better by the next day, though.
I also talked to my doctor about my issues with pelvic adhesive disease and the possibly of surgery for a total hysterectomy, bilateral salpingo-oophorectomy, adhesiolysis, and possible colporrhaphy if necessary. I've had horrible pain that has just gotten worse over the last 16 years. I had to have a rectopexy and colon resection in 2010 that had to be done via open surgery. Then when I tried to get my tubes tied a year later, the surgeon couldn't even find one of my fallopian tubes because there was so much scar tissue from my previous surgery that has attached all of my pelvic organs together. So my doctor referred me to a urogynecologist and I'll have that appointment in a couple months to see what my options are. It shows he specializes in pelvic reconstruction surgery and I found that he was also recommended in the local Ehlers-Danlos FB group...so hopefully it'll all work out well.
In other news, we took the dogs to the groomer a few weeks ago. They had some major grinch toes goin' on! We had the groomer use a hypoallergenic shampoo for Nova, but she's still been having allergy issues. I'm thinking it might be the doggy perfume. We made their next appointment while we were there, so I'll have to remember to talk to her about it then. We also need to make their appointment for their vaccines and Nova's allergy shot.
I finally got around to printing my planner. I haven't had a paper planner in years...but I've been missing it. Especially now that I can print my own stickers! I also still have a lot of Happy Planner stickers to use, too.
Work has been going well. April was a bit slow, but still better than it was in April 2025. I need to finish listing products on my website. I'm also thinking about giving TikTok shop another try, but we'll see. I was able to create the shop this time without any problems (as opposed to last time when it was a nightmare), so I suppose that's at least progress.
We've also been getting ready for Johnny's trip out to Seattle. His mom had another stroke last month and isn't recovering like she had with the strokes she'd had before. He'll be staying with his brother again. I'm glad he'll get to spend the time with his family, but the doggies and I will definitely miss him!
